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Open AccessOC37 – Adolescents with cystic fibrosis: their perspective

09 May 2016

Nursing Children and Young People

Supplement

Theme: Complex health care and chronic disease management. Introduction: The adolescent with cystic fibrosis suffers from organic distresses and requires support to...

Cystic fibrosis: adolescent care

14 September 2000

Nursing Standard

CPD

On reaching adolescence, children with cystic fibrosis develop different needs and become more independent, which means taking more responsibility for their own...

Teaching young children about cystic fibrosis

01 May 2004

Paediatric Nursing

Clinical

Cystic fibrosis (CF) is the UK’s most common, life-threatening, inherited disease, affecting over 7, 500 people (Cystic Fibrosis Trust 2004). According to Dodge et...

Information needs of young people with cystic fibrosis

01 July 2002

Paediatric Nursing

Clinical

There is an increasing need to involve patients in healthcare decisions and obtain the views of users on service provision. Designed to Care (Scottish Executive...

Cystic fibrosis-related diabetes: practice challenges

01 March 2005

Paediatric Nursing

Clinical

Cystic fibrosis (CF) is the most common life threatening, multi-system, recessively inherited disease of Caucasian populations with an incidence of one in 2,500...

Psychosocial impact of cystic fibrosis in adolescence

01 December 2007

Paediatric Nursing

Clinical

Over 8,000 children, young people and adults In the UK are affected by cystic fibrosis and although no cure exists, comprehensive therapy started early and...

Guidelines for the transition from child to adult cystic fibrosis care

01 June 2013

Nursing Children and Young People

Art & Science

Aim To develop relevant and feasible guidelines for transition care, based on the perspectives of stakeholders. Methods A sequential exploratory mixed method design:...

What parents of children with cystic fibrosis expect of educational events

09 September 2014

Nursing Children and Young People

Art & Science

The aim of this study was to evaluate a parent/carer hospital-based educational event and increase future participation by tailoring the format to meet parent/carer...

Cystic fibrosis: transition from paediatric to adult care

08 October 2003

Nursing Standard

Art & Science

There is a current caseload of 350 children with cystic fibrosis at the Royal Brompton Hospital, and adult caseload of more than six hundred. Approximately 100 young...

Diagnosis and management of cystic fibrosis-related diabetes in adults

25 March 2009

Nursing Standard

Art & Science

Diabetes is an increasingly common complication in adolescents and adults with cystic fibrosis. However, there is little research on the physical and psychological...

04 December 2024 / Vol 39 issue 12

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