Learning Disability Practice

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Respite care needs for families of children with life-limiting conditions

04 July 2011

Nursing Children and Young People

General

The Framework for Respite in Partnership with Parents (FRiPP), developed by the Jessie May Trust is a tool to enable a standardised and equitable allocation of a...

Making the most of life

14 October 2008

Nursing Standard

Feature

The Ty Hafan hospice in south Wales offers care to children with life-limiting conditions, but many nurses are unaware of the additional services it provides to...

Respite services for children with life-limiting conditions and their families in Ireland

08 December 2016

Nursing Children and Young People

Evidence & practice

Appropriate respite care for children with life-limiting conditions (LLC) and their families is the cornerstone of high quality paediatric care. The effect of caring...

Magic moments

11 January 2011

Nursing Standard

Feature

Every year volunteer nurses accompany children with life-limiting conditions and their families on a trip to Walt Disney World, Florida.

Caring for children at home

22 May 2007

Nursing Standard

Feature

There are wide variations in the way children’s palliative care needs are met in the community. Researchers are helping to improve services.

Helping young people who have learning disabilities and their families to plan end of life care: the ADVANCE toolkit

23 November 2018

Learning Disability Practice

end of life care

Young people who have learning disabilities commonly have many complex and severe life-limiting conditions that result in premature death. Too often neither they nor...

Happier endings

12 October 2010

Nursing Standard

Feature

A nurse-led children’s hospice in Wales is acting as a model of care for other services.

09 October 2024 / Vol 27 issue 5

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