Continuity of care for adults living in the community who have been diagnosed with congenital heart disease
Intended for healthcare professionals
Evidence and practice    

Continuity of care for adults living in the community who have been diagnosed with congenital heart disease

Suzanne Fredericks Associate professor, Ryerson University, Toronto ON, Canada
Jennifer Lapum Professor, Ryerson University, Toronto ON, Canada
Jennifer Graham Member and advocate, Canadian Congenital Heart Alliance, Oakville ON, Canada
Jinal Patel Research assistant, Ryerson University, Toronto ON, Canada
Terrence Yau Professor, University Health Network, Toronto ON, Canada
Barbara Bailey Advanced practice nurse, University Health Network, Toronto ON, Canada
Ariane Marelli Professor, Faculty of Medicine, McGill University, Montreal QC, Canada

There is a need for continuity of care for adults diagnosed with congenital heart disease (CHD) who have transitioned out of paediatric services and live in the community. The aim of this scoping review was to determine the types of psychosocial resources available to them. It examined English-language materials published or accessible between 1997 and 2018 that addressed CHD interventions. The findings suggest no psychosocial-based interventions for the adult CHD population have been evaluated. However, preliminary evidence begins to describe the needs and challenges of people with CHD in the community and primary care; it also identifies possible

Primary Health Care. 29, 3, 34-39. doi: 10.7748/phc.2019.e1486

Correspondence

sfrederi@ryerson.ca

Peer review

This article has been subject to external double-blind peer review and has been checked for plagiarism using automated software

Conflict of interest

None declared

Permission

To reuse this article or for information about reprints and permissions, please contact permissions@rcni.com

Write for us

For information about writing for RCNi journals, contact writeforus@rcni.com

For author guidelines, go to rcni.com/writeforus

Want to read more?

RCNi-Plus
Already have access? Log in

or

3-month trial offer for £5.25/month

Subscribe today and save 50% on your first three months
RCNi Plus users have full access to the following benefits:
  • Unlimited access to all 10 RCNi Journals
  • RCNi Learning featuring over 175 modules to easily earn CPD time
  • NMC-compliant RCNi Revalidation Portfolio to stay on track with your progress
  • Personalised newsletters tailored to your interests
  • A customisable dashboard with over 200 topics
Subscribe

Alternatively, you can purchase access to this article for the next seven days. Buy now


Are you a student? Our student subscription has content especially for you.
Find out more