Innovative approach to providing 24/7 palliative care for children
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Innovative approach to providing 24/7 palliative care for children

Linda Maynard Nurse consultant, East Anglia’s Children’s Hospices
Deborah Lynn Clinical nurse specialist, East Anglia’s Children’s Hospices

Linda Maynard and Deborah Lynn give an account of a service that filled a critical gap in provision and empowered families to make choices about care

This study outlines an innovative, English hospice-based service that provides 24/7 care for children with life-limiting conditions and their families. Operational objectives were: symptom management; open access to families and professionals; choice in place of care and of death; and collaboration to develop shared pathways and management plans.

Service standards were audited through questionnaires completed by professionals and families. Findings demonstrated that the nursing team filled a critical gap and met its pre-set standards. Keys to success were: having the right level and mix of specialist and advanced skills; funded on-call arrangements; anticipatory planning; symptom management plans; and clinical supervision. Further recommendations were to develop a multi-agency workforce strategy, and to increase capacity in the children’s sector to undertake academic research measuring the impacts of interventions.

Nursing Children and Young People. 26, 6, 27-34. doi: 10.7748/ncyp.26.6.27.e445


Peer review

This article has been subject to open peer review

Conflict of interest

None declared

Received: 27 August 2013

Accepted: 15 January 2014

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