Family-focused children’s end of life care in hospital and at home
Intended for healthcare professionals
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Family-focused children’s end of life care in hospital and at home

Helen Parker Senior sister, children’s community nursing team, Poole NHS Foundation Trust
Mairead Farrell Children’s palliative care nurse, Three Ells Trust/Dorset County Hospital NHS Foundation Trust
Allison Ryder Lead nurse paediatrics, Dorset County Hospital NHS Foundation Trust
Karen Fernley Senior sister, children’s unit, Poole NHS Foundation Trust
Chantel Cox Research nurse, Bournemouth Hospital, and a bereaved parent
Helen Farasat Senior lecturer in children’s and young people’s nursing, Bournemouth University
Jaqui Hewitt-Taylor Senior lecturer in practice development, Bournemouth University

Helen Parker and colleagues describe how nurses applied practice development methodology and reflection to develop a flexible service supporting parents at a time and place they most need it

An increasing number of children and young people require end of life care, and providing them and their families with optimum support at this time is crucial. This article describes how nurses working with children and families in home, hospital and community settings used the principles of practice development methodology to develop end of life care provision and follow-up bereavement support. It outlines the ‘ways of knowing’ that informed developments and how parents’ priorities were kept central to the process. Finally, it discusses how the approach taken to practice development reflected the value of compassion in nursing practice.

Nursing Children and Young People. 26, 6, 35-39. doi: 10.7748/ncyp.26.6.35.e451


Peer review

This article has been subject to open peer review

Conflict of interest

None declared

Received: 14 September 2013

Accepted: 05 December 2013

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