Caring for children and young people with inherited cardiac conditions: the evolving role of specialist nurses
Intended for healthcare professionals
Evidence and practice    

Caring for children and young people with inherited cardiac conditions: the evolving role of specialist nurses

Jennifer Tollit Research fellow, Institute of Cardiovascular Science, Rayne Institute, University College London, London, England
Stephanie Oates Genetic counsellor, Great Ormond Street Hospital for Children NHS Foundation Trust, London, England
Alessia Odori Clinical nurse specialist, Great Ormond Street Hospital for Children NHS Foundation Trust, London, England
Sorcha Smyth Clinical nurse specialist, Great Ormond Street Hospital for Children NHS Foundation Trust, London, England
Juan Pablo Kaski Consultant cardiologist, Institute of Cardiovascular Science, University College London, London, England
Ella Field Research nurse, Great Ormond Street Hospital for Children NHS Foundation Trust, London, England

Why you should read this article:
  • To enhance your knowledge of various inherited cardiac conditions (ICCs), including their symptoms and treatment

  • To understand how nurses can help to address the challenges specific to the care of children and young people affected by ICCs

  • To recognise the areas for development in ICC nursing and services

Inherited cardiac conditions (ICCs) encompass a range of rare genetic heart diseases and require the expert care of a skilled multidisciplinary team. Increased awareness of these conditions and advances in genetic testing have led to a rise in demand for specialist ICC services. The Centre for Inherited Cardiovascular Diseases at Great Ormond Street Hospital in London, England, is a tertiary centre for the diagnosis and management of ICCs in children and young people. Specialist nursing roles have developed at the centre in recent years in parallel with the growth of ICC nursing. There are also increasing opportunities for advanced and autonomous nursing practice to support the provision of high-quality care for children and young people affected by ICCs and their families.

Nursing Children and Young People. doi: 10.7748/ncyp.2024.e1532

Peer review

This article has been subject to open peer review and checked for plagiarism using automated software

Correspondence

j.tollit@ucl.ac.uk

Conflict of interest

None declared

Tollit J, Oates S, Odori A et al (2024) Caring for children and young people with inherited cardiac conditions: the evolving role of specialist nurses. Nursing Children and Young People. doi: 10.7748/ncyp.2024.e1532

Acknowledgements

The authors would like to acknowledge the following individuals from the nursing team at the Centre for Inherited Cardiovascular Diseases at Great Ormond Street Hospital for their contribution in reviewing the article: Ida Atti, Emma Blackwood, Nichola French, Emma Lord, Anna Rose McKeever, Rebecca Thompson and Helen Walsh

Published online: 16 December 2024

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