Rare epilepsy syndromes: understanding treatment goals and management challenges
Intended for healthcare professionals
CPD    

Rare epilepsy syndromes: understanding treatment goals and management challenges

Niamh Kerr Registered nurse tutor, Muiríosa Foundation, Moore Abbey, Monasterevin, Kildare, Ireland

Why you should read this article:
  • To develop your knowledge of rare epilepsy syndromes

  • To enhance your understanding of the association between epilepsy and learning disability

  • To contribute towards revalidation as part of your 35 hours of CPD (UK readers)

  • To contribute towards your professional development and local registration renewal requirements (non-UK readers)

Epilepsy is more prevalent in people with learning disabilities than in the general population and there are a number of rare epilepsy syndromes closely associated with learning disability. These syndromes are challenging to manage, notably because seizures are often refractory, the risk of status epilepticus is high and comorbidities are usually present. People with a rare epilepsy syndrome need high levels of specialist support throughout their lives. Such syndromes are rare, but professionals who care for people with learning disabilities are likely to encounter them at some point in their career. Improved knowledge and understanding of rare epilepsy syndromes can assist learning disability nurses to provide adequate information, care and support to service users, family members and paid carers as well as to other healthcare professionals.

This article explains the association between epilepsy and learning disability, describes rare epilepsy syndromes and explores the goals of treatment, additional treatment options and challenges of management.

Learning Disability Practice. doi: 10.7748/ldp.2023.e2230

Peer review

This article has been subject to external double-blind peer review and checked for plagiarism using automated software

Correspondence

kerrn@tcd.ie

Conflict of interest

None declared

Kerr N (2023) Rare epilepsy syndromes: understanding treatment goals and management challenges. Learning Disability Practice. doi: 10.7748/ldp.2023.e2230

Published online: 30 November 2023

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