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death counts: the challenge of death and dying in learning disability services

01 December 2004

Learning Disability Practice

A&S Science

There’s nothing new in declaring that inequality and difference can characterise the lives of people with learning disabilities. However, it is novel to argue that...

Loss, bereavement and learning disabilities: providing a continuum of support

01 February 2005

Learning Disability Practice

CPD

This article explores the concept of loss in relation to the support of people with learning disabilities. With appropriate help they can develop strategies to...

Grief and the experiences of nurses providing palliative care to children and young people at home

01 November 2013

Nursing Children and Young People

Art & Science

Aims To elicit the views of children’s nurses with regard to the personal, contextual and interprofessional challenges faced when delivering palliative and end of...

Implications for carers of terminally ill patients dying at home

18 September 2013

Nursing Standard

Art & Science

Most terminally ill patients will express a wish to die at home. To achieve this, patients must rely on the support of family carers, who may experience emotional...

How to help children and young people understand death

01 February 2011

Primary Health Care

General

The need for appropriate support and care to help children and young people when a loved one is dying is being met by the Marie Curie Palliative Care Institute which...

A focused mapping review and synthesis of current practice in qualitative end of life research with the bereaved

22 August 2019

Nurse Researcher

recruitment and participation

Background Nursing research is dedicated to improving care, but research into end of life care can be challenging because of a possible reluctance by researchers to...

Role of children’s hospices in caring for children, young people and families

21 October 2024

Nursing Standard

Peer-reviewed articles

Children’s hospices are central to specialist palliative care provision for the increasing number of children and young people with life-limiting conditions and...

One chance to get it right

17 October 2007

Nursing Standard

Feature

Sheila Payne’s work at Lancaster University brings together the high-tech and basic – but essential – aspects of end-of-life care.

Evaluation of service user-led workshops in children’s palliative care education

19 June 2023

Nursing Children and Young People

Life-limiting conditions

Children’s nurses report feeling unprepared when caring for children with life-limiting conditions and their families, while the value of including service users in...

Overcoming challenges in community end of life care during the COVID-19 pandemic

05 May 2021

Nursing Standard

end of life care

The coronavirus disease 2019 (COVID-19) pandemic has significantly affected people at the end of life who are being cared for in community settings, as well as their...