Setting up an advisory group to explore the role of partners of adolescents and young adults in cancer care
evidence and practice    

Setting up an advisory group to explore the role of partners of adolescents and young adults in cancer care

Jane Davies Senior lecturer and postgraduate research programme manager, Cardiff University, Cardiff, Wales
Jamie Cargill Consultant nurse, Teenage Cancer Trust, University Hospitals Bristol NHS Foundation Trust, Bristol, England
Heena Mistry Service user, Cardiff, Wales; Elliot Moss, service user, Cardiff, Wales

Why you should read this article:
  • To understand the needs of partners of adolescents and young adults with cancer

  • To recognise the value of public patient involvement with a particular focus on the role of partners for adolescents and young adults experiencing cancer

  • To familiarise yourself with how partners can support the needs of adolescents and young adults with cancer

Minimal research has been undertaken into needs of partners of adolescents and young adults with cancer. However, it is understood to be important for adolescents and young adults with cancer to maintain a connection with healthy peers and that they regard their loved ones, including partners, as valuable to them during their cancer treatment. Research has also suggested that adolescents and young adults consider that loved ones and partners also need support and that this support is lacking in cancer services. A recent research project by the first author (JD) examined the experience and role of partners in meeting the support needs of adolescents and young adults with cancer. A vital aspect of the project was the use of patient and public involvement in the development of a young adult advisory group – consisting of couples where one person in the relationship had been treated for cancer – to inform all aspects of the research. This article provides a brief summary of the completed research, and describes the development and work of the advisory group.

Cancer Nursing Practice. doi: 10.7748/cnp.2021.e1758

Peer review

This article has been subject to external double-blind peer review and checked for plagiarism using automated software

Correspondence

daviesjp3@cf.ac.uk

Conflict of interest

None declared

Davies J, Cargill J, Mistry H et al (2021) Setting up an advisory group to explore the role of partners of adolescents and young adults in cancer care. Cancer Nursing Practice. doi: 10.7748/cnp.2021.e1758

Published online: 27 May 2021

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