Promoting participation of people with dementia in research
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Promoting participation of people with dementia in research

Goiz-Eder Aspe Juaristi Dementia challenge project manager, Clinical Research Network, East Midlands, England
Karen Harrison Dening Head of research and evaluation, Dementia UK, London, England

Dementia is a neurodegenerative disorder that can have a severe effect on the quality of life of individuals with the condition, and can place considerable strain on informal carers and healthcare systems. Research is required to identify ways to prevent or delay the onset of dementia. The government is committed to dementia research, yet funding for dementia research is eclipsed by funding for research into other conditions. Moreover, dementia research can only progress if individuals with the condition participate in research studies. This article discusses barriers associated with research into dementia and describes a UK government initiative, Join Dementia Research, which supports research participation for people with dementia.

Nursing Standard. 30, 39,38-43. doi: 10.7748/ns.30.39.38.s43

Correspondence

goiz-eder.aspejuaristi@nihr.ac.uk

Peer review

All articles are subject to external double-blind peer review and checked for plagiarism using automated software.

Received: 03 March 2016

Accepted: 11 March 2016