Educating children and families about growth hormone deficiency and its management: part 2
Jacqueline Collin Lecturer/head of department, child and adolescent nursing, King’s College London
Amanda Whitehead Children’s endocrine specialist nurse, Leeds Teaching Hospitals NHS Trust
Jenny Walker Children’s endocrine specialist nurse, Leeds Teaching Hospitals NHS Trust
Growth hormone deficiency (GHD) is a long-term condition, therefore creating ongoing partnerships with families is a fundamental part of the role of a paediatric endocrine nurse specialist (PENS). Teaching children, young people and their families about GHD and exploring what it means to them and how they can manage their ongoing treatment is central to building positive relationships. Educating children about the management of their growth hormone treatment (GHT) is an ongoing process and professionals must respond to the changing needs for that information children may have as they grow and develop. Long-term relationships with families are strengthened by recognising and respecting the developing expertise of families as they gain confidence and competence to manage GHT.
This article is the second of two parts. Part one was published in the February issue of Nursing Children and Young People and covered an overview of growth hormone, causes and clinical presentation of GHD, development and availability of GHT and the role of the PENS in building partnerships with parents. The focus of this article is the education role of the PENS and the importance of providing information that is appropriate to the child or young person’s developmental age.
Nursing Children and Young People. 28, 2,30-36. doi: 10.7748/ncyp.28.2.30.s23Correspondence
This article has been subject to open peer review and checked using antiplagiarism software.Conflict of interest
Received: 12 September 2015
Accepted: 17 November 2015