Improving care for children with Down’s syndrome
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Improving care for children with Down’s syndrome

Jayne Harris Senior lecturer in child health, Birmingham City University
Lisa Abbott Senior lecturer in child health, Birmingham City University
Mark Jukes Reader in learning disabilities, Department of mental health and learning disabilities at Birmingham City University

Jayne Harris and colleagues discuss how healthcare staff can meet the needs of children and their families in acute care settings

This article refers to a personal narrative in which the parents of a child born with Down’s syndrome, who subsequently required surgical intervention for a duodenal atresia, experienced a poor standard of care. It discusses how healthcare organisations can improve the service provided for such patients by making reasonable adjustments, setting up pre-admission services, introducing hospital passports and allocating acute liaison nurses to the parents, and urges all healthcare staff to sign up to Mencap’s (2010) Getting it Right charter.

Learning Disability Practice. 15, 6,25-29. doi: 10.7748/ldp2012.07.15.6.25.c9171

Correspondence

mark.jukes@bcu.ac.uk

Peer review

This article has been subject to double blind peer review

Conflict of interest

None declared

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