The value of service user feedback
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The value of service user feedback

Zoe Whale Training and development manager, National Institute for Social Care and Health Research Clinical Research Centre (NISCHR CRC), Cardiff
Barbara Moore Communications and engagement manager, NISCHR CRC (formerly Cancer Research UK senior nurse, NISCHR CRC)
Erica Howells Communications officer, NISCHR CRC

Zoe Whale and colleagues report on the outcome of a workshop involving patients who are taking part in clinical trials to help inform and improve healthcare research

Wales Cancer Research Network was invited to host a patient panel workshop at a national conference, using patients’ experience in clinical trials to improve the cancer research community’s practice. Five patients were identified and ‘buddied’ with healthcare professionals involved in research. During the workshop, five facilitated groups heard patients’ views and feelings about participating in trials. The main messages imparted were: approach patients early and involve the whole team, provide clear information and check understanding, and improve patients’ access to research results. A short film has been made to highlight the importance of using patient experience in clinical trials to improve research practice.

Cancer Nursing Practice. 12, 2,22-23. doi: 10.7748/cnp2013.03.12.2.22.e929

Correspondence

zoe.whale@wales.nhs.uk

Peer review

This article has been subject to double blind peer review

Conflict of interest

None declared

Received: 02 November 2012

Accepted: 12 December 2012