Findings from the National Mesothelioma Experience Survey
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Findings from the National Mesothelioma Experience Survey

Liz Darlison Macmillan nurse consultant, Mesothelioma UK/University Hospitals of Leicester NHS Trust
Dawn Mckinley Operational manager, British Thoracic Oncology Group and Mesothelioma UK/University Hospitals of Leicester NHS Trust
Sally Moore Nursing research fellow, Royal Marsden NHS Foundation Trust, Surrey

Liz Darlison and colleagues present feedback from patients, families and carers regarding the support they receive from healthcare services

This article reports on the results of the National Mesothelioma Experience Survey, which provided people with mesothelioma, and their families and carers, with an opportunity to comment on the management and support they received from healthcare services. The findings highlight a need to improve assistance with the physical, emotional and social effects of mesothelioma, and suggest that those with peritoneal mesothelioma may experience poorer care than those with pleural disease.

Cancer Nursing Practice. 13, 3,32-38. doi: 10.7748/cnp2014.04.13.3.32.e1063

Correspondence

sally.moore@rmh.nhs.uk

Peer review

This article has been subject to double blind peer review

Conflict of interest

None declared

Received: 06 January 2014

Accepted: 18 February 2014