Liz Darlison and colleagues present feedback from patients, families and carers regarding the support they receive from healthcare services

This article reports on the results of the National Mesothelioma Experience Survey, which provided people with mesothelioma, and their families and carers, with an opportunity to comment on the management and support they received from healthcare services. The findings highlight a need to improve assistance with the physical, emotional and social effects of mesothelioma, and suggest that those with peritoneal mesothelioma may experience poorer care than those with pleural disease.