Nursing Children and Young People

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Scarce support changes lives

10 August 2010

Nursing Standard

Feature

Patients with rare diseases often feel isolated and can struggle to find information, but nurse specialists can help.

Interdisciplinary care of a neonate with haemophagocytic lymphohistiocytosis

07 November 2017

Nursing Children and Young People

Rare diseases

Haemophagocytic lymphohistiocytosis (HLH) is a rare condition not commonly observed in neonatal units. It poses a challenge to neonatal staff to source expertise and...

A special relationship

28 June 2011

Nursing Standard

Feature

Nurse specialists can make a world of difference to patients with rare diseases, who otherwise can struggle to get an accurate diagnosis and appropriate treatment.

Introduction to genetics and genomics:a revised framework for nurses

23 October 2013

Nursing Standard

Art & Science

The genetics education framework for nurses first published in 2003 has been revised to reflect advances in genomic research and technology and its implications for...

07 March 2024 / Vol 36 issue 2

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