Lifeline for patients with a rare neurological condition
Two advanced nurse practitioners initiated and developed the world’s first dedicated service for patients with neuromyelitis optica, helping to prevent and manage debilitating relapses
One morning in 1999, Grace woke up with pain in her back. By 4pm that day she was unable to move from the neck down. She was diagnosed with transverse myelitis – inflammation of both sides of a section of the spinal cord – and spent ten months in hospital. Four years later, she awoke one day unable to see out of her left eye. The eye has never recovered, and she is now tetraplegic and requires full-time care.
Nursing Standard. 32, 20,26-28. doi: 10.7748/ns.32.20.26.s18