Developing and designing research through consultation and collaboration with children and young people

THERE IS an increasing recognition of the importance of involving patients, family members and the public in health research. This involvement is commonly termed patient and public involvement (PPI) and refers to an ‘active partnership between the public and researchers’. This is different to children, young people and/or parents being participants in a research project. Effective PPI ensures that research does not just focus on professionally driven priorities, but addresses what actually matters to children, young people and their families.