evidence and practice
Sickle cell anaemia and the experiences of young people living with the condition
Nicole Foster Staff nurse, Gloucestershire Royal Hospital, Gloucester, England
Michelle Ellis Senior lecturer in child health, School of Health Sciences, City, University of London, England
Sickle cell anaemia (SCA) is a life-threatening haemoglobin disorder acknowledged for its unpredictability and painful episodes. The aim of this qualitative literature review was to explore the experiences of young people living with SCA and its effect on their lives. The objective was to critically review selected primary research and make recommendations for practice, education and research. After reviewing potential articles using EBSCOhost, inclusion and exclusion criteria were devised and six appropriate studies were found with most participants in the 10-25 years age range. These studies were conducted in the UK and the United States. The Critical Appraisal Skills Programme qualitative research checklist was used to evaluate the articles.
Thematic analysis identified three themes: acceptance, support and unpredictability, with sub-themes of spirituality and discrimination. It was clear that SCA affected multiple areas of young people’s lives. Recommendations are made for practice, education and research.
Nursing Children and Young People. doi: 10.7748/ncyp.2018.e935Citation
Foster N, Ellis M (2018) Sickle cell anaemia and the experiences of young people living with the condition. Nursing Children and Young People. doi: 10.7748/ncyp.2018.e935Peer review
This article has been subject to open peer review and has been checked for plagiarism using automated softwareCorrespondence
Published online: 26 April 2018
Want to read more?
Subscribe for unlimited access
Try 1 month’s access for just £1 and get:
- Full access to the website and the online archive
- Bi-monthly digital edition
- RCNi Portfolio and interactive CPD quizzes
- RCNi Learning with 200+ evidence-based modules
- 10 articles a month from any other RCNi journal
Already subscribed? Log in
Alternatively, you can purchase access to this article for the next seven days. Buy now