Patients and parents found combined information and review booklets helpful for understanding complex drug treatment, as Suzi Crawford explains

Provision of accurate, understandable information has always been, and will continue to be, a vital element in patient care. Information about medication and other treatments is important because it enables the individual to give informed consent: to accept or decline any treatment being offered. When staff at the Birmingham Children’s Hospital began offering hydroxyurea treatment to selected children and young people with heamoglobinopathies, it was decided that a booklet should be developed which would incorporate information, consent forms and review information.